I have a friend of mine who identifies the worrying, planning, and problem-solving of living as "marbles".
We need marbles for work, home life, maintaining health. When they're used up, when there's no more physical or emotional power to cope with life, we've run out of marbles.
It takes so much for us Meniere's sufferers to do what other people consider simple tasks. It seems like all our energy is spent making sure we're ok so that we can function.
Wouldn't it be nice if it was all easier?
This post is to help you get your marbles back.
Have a health program that simplifies cooking and eating.
I've had times when I didn't have food around when a dizzy spell hit. I'd go a few days without eating because I couldn't cook or shop.
Then I felt weak for another few days while I tried to catch up on my nutrition. The worry about getting weak and tired added to the fear of a dizzy attack, and I was freaked out most of my time.
Find a way to put down good nutrients when you don't feel well. Know how you're going to handle food, water, and cooking when you're down. You'll recover a lot faster, and you'll cut down on the fear of what's going to happen to you if a dizzy spell comes.
Here are some ideas:
A plan always makes things easier.
Find a working balance with sodium, water, and food.
If I don't have my usual amount of water for a few of days, I'll have a dizzy spell. I also know how far I can push the sodium, when it's safe to go out to eat.
That's because I know where my home base is. You find it by starting with a water/sodium level, then listening to your body for how it feels. Are you tired? A diet that's too low in sodium could be the problem.
An increase in dizzy spells could mean you need more water, not just less sodium. Remove processed foods until you feel right.
When you feel good consistently, you know you've found your own special balance. Now you can control what and when you eat and drink, knowing that you can always return to what you know works. No more feeling like we're powerless.
See these articles for a starting point on water and sodium.
When you feel good, relax a little on the schedule, and when you feel bad, go back to home base. Your body tells you what it needs. Listen to it.
Say no more often.
Disease brings out guilt. We feel like we're not good enough, or we're bad because we're not well enough, not available like other people are.
So we overcompensate when we don't have to. Being more "nice" than we feel, saying yes to appointments and activities we don't really want to do and don't really matter to us or our family's well-being.
If you take these little moments away from your life by saying no to them, life gets a lot easier real fast. And it builds confidence and self-respect:
Give up fighting.
Knowing how to handle the down times gives you acceptance of the disease. Acceptance is power. The more power you have, the easier life is.
With acceptance comes a special way of not fighting it. Get into flowing with whatever happens, and bring your tools and knowledge to it.
Life gets real easy when we accept (with power) the crappy stuff that happens to us.
A fun life is an easy life. Make a deal: "The first thing that happens when this dizzy spell is over is to get into this thing I really love doing."
If it happens that you have an attack on Sunday, and it's over on Monday, but you have to work, call in sick and play. You've earned it.
Most people go through life following the rules and things people tell us is right. But things are different for us. We can't win on the same terms as other people. That's why we change the rules.
I found all this out the hard way. I hope what I have here helps you win in your world.
If it does, tell me how in the comments below.
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